Friday, January 22, 2016

Answers

From Facebook?

Yep

I saw a suggested link that mentioned language issues.  Aphasia.  Now it has a name. One of those scary thing that doctors have blown off. At times, I can't understand spoke language.  The article was about migraine headaches.

Then I took a trip over to Web md.

  • Severe, throbbing pain, often on one side of your head
  • A pins-and-needles feeling, often moving from your hand up your arm
  • Numbness on one side of your body, which can include your arm, leg, and/or one side of your face
  • Weakness or paralysis on one side of your body
  • Loss of balance and coordination
  • Visual aura, such as seeing zigzag lines, double vision, or blind spots
  • Language difficulties, such as mixing words or trouble remembering a word
  • Slurred speech
  • Dizziness or vertigo
  • Nausea and vomiting
  • Extreme sensitivity to light, sound, and smell
  • Confusion
  • Decreased consciousness or coma
Wow!  This describes everything!  Dragon says that it looks like I am having a stroke.  It is scary.  One side of my face droops, I can't understand language, getting lost on familiar streets, falling, dropping things.  The flashing lights, the way things look shiny. 

All of this goes right back to the migraines. 

An MD called them rebound headaches. Two neurologists called me a faker.  I was afraid.  Still am even though I know it gets better. Dropping a jug of cranberry juice at the grocery store makes a huge mess. Admitting that I can't understand what someone is saying is embarrassing but they get frustrated when I keep saying "what?"  

I'm not a whiner or a squeaky wheel.  When I am told that I am a faker, I assume that no one will believe me. 

I am going to make a list and keep a headache journal. When I have everything together I am going to ask!  "Could all of this be linked to my migraines?" and ""What can be done about it?"

I never would have linked all of those things together.  Just wow.  Facebook?  Yep.  

This is a strange world we live in. 

3 comments:

  1. So happy you are on the road to finding answers, Rose. Here's two thoughts for you:
    1. I suffered from migraines for years. Thanks to my childhood doctor, who was an old fashioned GP, I started keeping a food journal/headache journal. We discovered that I am allergic to MSG and it presents in extreme migraines. I am lucky in that I don't have the aphasia but do have the nausea and vomiting along with sensitivity to light, sound and movement.
    2. I started getting very sick in December of '90 and went from doctor to doctor to doctor with all of them telling me there was nothing wrong...it was all in my head. I kept getting worse, losing weight and was sure I was totally losing my mind. I finally found a resident at a teaching hospital clinic (had no insurance at the time) who ran a complete head to toe physical and discovered the issue...ended up in the hospital for 10 days with a 6 hour surgery...darn near died. My point being...be persistent and fight for yourself! Don't let them convince you it's all in your head.

    Sending lots of prayers, healing energy and positive thoughts. I am here if there is anything I can do for you.

    Hugs and blessings...Cat

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    1. Thanks Cat. I was just surprised to find real answers on Facebook. Didn't believe it so I looked it up on a page I trust and there it was. I have been looking for answers for almost 15 years. It is hard to keep trying when I get told that I am just seeking attention. I wonder if a chiropractor could help? I am just tired of hurting, being afraid and embarrassed. Just knowing that it isn't my imagination helps.

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  2. Glad you were able to find answers and hope they help.

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